Thursday, January 12, 2012

January 12, 2012


31 years ago today I got sick.  Always a weird day of memories and a day I think about my mom a lot.  I have been away from this blog for awhile now, and it's time to get back....

Eddie http://www.youtube.com/watch?v=8a-Cuf3fMgs&feature=related

2 comments:

  1. Eddie! You're my hero for writing this blog. My 6 year old son was recently diagnosed with Rhabdo. Please help me understand this from his perspective! Thank you! Www.claytonwins.blogspot.com. Ccastle@grandecom.net
    Blessings-
    Kesleigh Castle

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  2. Eddie,
    Reading the beginning of your blog, when your whole "cancer journey" began, was like reading my son's own experience 6 months ago. Tucker, 7 years old, was diagnosed with Rhabdo of the Prostate in April. His "cancer story" began in late February and continued, very similar to yours, through March and half of April. His urge to use the restroom, not being able to go, the crying and screaming in pain, trips to Urgent Care (where he was cathed and 800 ml was collected), hospital, ER and Urologist's office, docs sending him home while ensuring us it was "all psychological" and he would eventually go, the continued pain, all the caths (in and out and in and out, telling us he had an inflamed bladder or a displaced bladder, me questioning all of the docs over and over and never getting a consistent or satisfying response...and the list goes on.
    I hope you continue to share your story. It is inspiring and brings me great hope. Tucker continues to receive chemo, has gone through 6 weeks of radiation, and may have surgery within the next few months. That's what scares me. Although the tumor has shrunk 95% (it was 10 cm by 2 cm or something like that....HUGE) the docs think more chemo will make it easier to remove surgically. If surgery were to be performed today, he would most likely lose his prostate, part or all of his bladder, his uretha, and some "important" nerves.
    So chemo shall continue for a few more months. I panic and become sad and depressed when I think of his future...the reality of what may happen. I try not to think about it during the day because I would cry, and he and his twin brother wouldn't understand. They do not know the severity of cancer, and I would like to keep it that way.
    I will continue to read your blog. It gives me great hope, and I hope you continue to share your story. I am ESTATIC that you are now a grown man who is cancer-free.

    Sincerely,
    Jen G.

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